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OptiMuS wants to improve health care for chronic diseases, using multiple sclerosis (MS) as exemplar, by making structured patient relevant information on large populations accessible to scientists, patients, regulators and payers.
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1. OptiMuS will set up a meta-registry for merging and making accessible structured clinical and patient centered information on MS across Europe.
2. OptiMuS will create a platform for linking patient relevant information to novel data sources including patient reported outcomes, imaging information and health economy information.
3. OptiMuS will co-ordinate, harmonize and facilitate the data collection efforts of existing established registries and promote the growth of recently started efforts and of new registries where such are lacking.
4. OptiMuS will promote parallel collection of clinical and patient reported information throughout Europe.
5. OptiMuS will establish a common research agenda and address the key scientific questions needing to be answered to provide optimal health care to every individual MS patient in Europe.